Steve, from Crawley, suffered heart and organ failure but is out of the induced coma and Bobby, from Redbridge in east London, is hopeful his sibling can return home at some point in the future.
After Covid spread to Steve’s nervous system, he was diagnosed with prolonged disorder of consciousness, meaning he cannot communicate or move his body, although he can blink and has a sleep pattern.
He was able to return home for the first time last month to be with Bobby, his wife Julie and other close family.
Bobby said: ‘The important thing is that Steve hasn’t gone back in these 16 months and when you consider his organs had initially failed, he is doing well. Four weeks ago he was allowed his first home visit and it was great to have him back in his own world surrounded by love and it has led us to plan for the future for Steve to come home.
‘Although he needs carers to help him as he can’t do anything by himself, he doesn’t have a lot of medical needs.
‘It was truly overwhelming to see Steve back in his house, it was a miracle for us and we want to make it happen for good.
‘You would have thought there would be tears but there wasn’t, the atmosphere was so uplifting and we were so excited to have him home.
‘We were full of positivity for Steve, he had a care assistant with him and we could all tell he was really relaxed. We know he has to and will improve, and it will mean the world to us to have him back home.’
The twins, whose DJ act is called Bobby & Steve from Groove Odyssey, believe they caught the virus after playing a gig in Madrid.
Steve was treated in East Surrey Hospital before being moved to another London hospital, where he is in an on-site nursing home.
Bobby and his wife, Sylma, have appeared on GMB to tell their family’s story and in Finding Derek, an intimate ITV documentary about long Covid presented by Garraway.
House music legends David Morales, Norman Jay MBE, Barbara Tucker and Trevor Nelson are among a who’s who of names supporting the Lavinieres with a gig on October 3 at the Ministry of Sound.
David Morales said: ‘I first met Bobby and Steve when I first went to London in the late 80s. Bobby and Steve have and still play a pivotal role in the world of house music in the UK. Respect.’
Norman Jay said: ‘Love, admiration and total respect for Steve as a terrific DJ and all round great music and family man which knows no bounds. ‘The music world’s a better place with Bobby and Steve.’
Funds will go to renovating Steve’s house with a view to his return and to his long-term rehabilitation.
The twins, who have six siblings, have had dozens of respected names in the dance music world come forward to support the Dance for Stevie event.
‘We’ve been overwhelmed by the reaction,’ Bobby said.
‘We’ve been DJing since 1984 and we could have filled up the bill a million times over, but to have people like David Morales saying “count me in bro” is a beautiful thing, it shows that people stick around to help others.’
Tickets are available here and a GoFundMe page can be found here.
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